We
think it’s
time for my son Alex (13, PDD-NOS) to spend more time away from his
parents because A) he seems to
want, as best as we can tell, to spend more time away from his parents;
and B)
We want him to spend more time away from his parents.
Other
efforts aside, we
recently again sent Alex away to a sweet week of overnight summer
camp.
“Camp?
Camp?”
he started saying days ago. “Camp?” he said as we took him to visit his
younger, typically developing Ned at the
overnight camp where Ned spent nearly a month this summer. We took Alex
up there
and he ran around the plywood hallways and through the screen doors; he
rooted
under Ned’s bunk for the green backpack that Alex himself has always
taken to
camp. He seemed to want to bring it home. “Camp? Piano?” Yes, this camp
of Ned’s
had a piano, which Alex glimpsed last year.
Ned
went to
camp several days before Alex. “Time to get Ned,” Alex kept saying.
This
was
Alex’s fifth year at his overnight camp, single weeks we’ve come to
treasure for
the unbroken sleep and the silent lack of Elmo. And all signs were
positive at
Alex’s bus pick-up. He sat and waited with my wife Jill while I stood in
the endless
line waiting to pass a ridiculously young person in a green T shirt his
Baggie
of respiration medicine. He waited in line without bolting, he said
“piano” as
the counselor strapped on the ID bracelet. “Do you have a piano at
camp?” I
asked her.
“We
do!” she
said.
He
said
good-bye to Jill; he waited for me at the bus door. “Daddy. Camp,” he
said,
kissing my arm. Then he vanished inside.
“Camp?
Daddy?
Mommy?” he said during his first phone call with us. It was much like a
real
phone talk. “How are you, Alex? Are you having a good time?” Hard to
know if he
was or he wasn’t, but he sounded reasonably stable. (Hard to know whose
voice it
was, too. “Do you think that was really Alex?” Jill asked after we’d
hung up.
“Do you think that was really Alex, Jeff? Why are you suddenly so
quiet?”) A few
nights later we call to speak to the young woman who’s shadowing him,
his
counsellor (We do!).
“He’s
having a
pretty good time,” she says. “We’ve taken walks down to the lake. He’s
ridden
horses, and today he said ‘Horse! Horse!’ He likes to run, but I keep
after him.
He’s turned on every light switch in the camp. I may have him call you
in a few
days,” she adds. “He’s been saying, ‘Daddy? Mommy?
Bus...”
He’ll
see that
bus soon, and when he returns we’ll hear the Elmo and wake in the middle
of the
night or at dawn, and again we’ll fight the pressure to make any
decision that
sends him away for much, much longer. At least he did get to camp for a
while, and for a special-needs kid -- and boy, especially for his family
-- that's a diversion that I hope the budget cuts never take away.
Jeff Stimpson
Writer and speaker to educators and professionals
jeffslife.tripod.com/ alextheboy
Twitter Name: Jeffslife
"Alex: The Fathering of a Preemie" (on Amazon and at academychicago.com) and "Alex the Boy: Episodes From A Family's Life With Autism" (available at vervante.com and on Amazon)
If you like the sound of the content please continue reading via the categories link in the right column, follow via email, comment on the forum or share with your friends with the social bookmarking buttons below each post by clicking on the buttons.
Jeff Stimpson
Writer and speaker to educators and professionals
jeffslife.tripod.com/
Twitter Name: Jeffslife
"Alex: The Fathering of a Preemie" (on Amazon and at academychicago.com) and "Alex the Boy: Episodes From A Family's Life With Autism" (available at vervante.com and on Amazon)
If you like the sound of the content please continue reading via the categories link in the right column, follow via email, comment on the forum or share with your friends with the social bookmarking buttons below each post by clicking on the buttons.
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